Neel Shah: Using bedside stories to unmuddy the waters--Kathleen O'Malley
Guest blogger Dr. Neel Shah is the Executive Director of www.CostsOfCare.org and a senior resident in the Massachusetts General Hospital-Brigham & Women’s Hospital combined residency in Obstetrics...
View ArticleThe unexpected power of storytelling--Kathleen O'Malley
The Journal of Participatory Medicine recently published a new commentary, “A Skydiver Jumps, and an Online Community Exults,” about the unexpected power of storytelling in a lung cancer support group....
View ArticleSteve Jobs’ Cancer Denial--John M. Grohol, Psy.D.
The 60 minutes interview with Steve Jobs’ biographer is an intriguing piece that gives us a few insights into Steve Jobs and his battle with pancreatic cancer. But the most disturbing part of the...
View ArticleNext “doctor as e-patient”: Howard Luks, MD--e-Patient Dave
We’ve sometimes written about doctors as e-patients. (There are a lot!) Here’s the next. SPM member Howard Luks MD, orthopedist, had some symptoms. He spoke to his physician and GI doc, who gave him...
View ArticleKari Ulrich: Experienced from both sides of the bed--Kathleen O'Malley
This guest post by Kari Ulrich, RN, originally appeared in a fibromuscular dysplasia e-patients’ blog. The November 2011 issue of Reader’s Digest reads in big, bold print, “50 Secrets Nurses Won’t Tell...
View ArticleElaine Schattner: Don Berwick, Head of CMS, on the Value of Patient-Centered...
Usually we talk about participatory medicine at the level of the individual care relationship, but increasingly we’re seeing the need to “Design and create a safe, decent, patient centered healthcare...
View ArticleKenneth S. Spriggs: The Benefits Of Visualizing Your Medical Data--Kathleen...
Guest blogger Ken Spriggs talks about how he made sense of his medical data by creating a graphic electronic health record, the DIYEHR. [Update 11/25: the data visualization that Ken created is so...
View ArticleA physician who really understands patient-centered care--Kathleen O'Malley
The Journal of Participatory Medicine has just published “The Patient Will See You Now,” a thought-provoking and rather moving narrative by John Krueger, MD. In telling his own story of becoming and...
View ArticleRheumatoid e-Patients Share the Spotlight at Medical Conferences--Kathleen...
The Journal of Participatory Medicine has published a narrative by Kelly Young entitled “Present, Patient, and Accounted for: How and Why Patients Are Present at Scientific Meetings of the American...
View ArticleHIT Journalist becomes patient advocate after seeing the danger of...
Neil Versel, a HIT journalist, relates a very touching story of his father’s care at two different hospitals: one was uncoordinated and prone to errors and near misses, another one was quite a good...
View ArticleA patient story: HIMSS’ Adam Bazer on IT from a patient’s perspective--Ileana...
From the HIMSS Blog, Adam Bazer with a personal health story where even in a great hospitals the IT is not as connected as can be. We wish your son Ari well, Adam!...
View ArticleWhen is patient data not patient data? When a patient wants his or her ICD...
The latest news story to examine the issue of patient access to implantable cardiac defibrillator data (a variation on the theme of “gimme my damn data”) is an in-depth, Page One Wall Street Journal...
View ArticleAngelina Jolie, BRCA1, Public Health, Patent Law —& the Empowered...
Going public recently with her story of a prophylactic double mastectomy after testing positive for BRCA1 (a gene linked to breast cancer) via an op-ed piece in the New York Times, Angelina Jolie is...
View ArticleRheumatoid Arthritis Ruined Her Elbow, But Nothing Could Break Her...
SPM member Kelly Young is one of the most spectacular, potent, world-changing e-patients I’ve ever seen. (See our many posts here about her activism.) Aside from all her work on RAWarrior.com and her...
View ArticleRegina Holliday: The Walking Gallery film--Casey Quinlan
Regina Holliday and her Walking Gallery project are featured in a new short film. Here it is: The Walking Gallery of Healthcare from Eidolon Films on Vimeo. How a movement begins…
View Articlee-Patient Lisa Adams--Ileana Balcu
In this guest blog post, member Carly Medosch describes Lisa Adams whom she knows from social media. Lisa Adams was diagnosed with stage 4 breast cancer and documented her journey in social media. In...
View ArticlePatients Invited! Health Informatics Conference seeks Patient...
An international conference addressing information technology and communication in health (ITCH) will be held February 26 – March 1, 2015 in Victoria, British Columbia, Canada. Professor Stephen...
View ArticleGuest post by Duncan Cross: I Sent This Letter To A Doctor Who Pissed Me...
Ordinarily we limit guest posts to current members of SPM, but this is an extraordinary case. Duncan Cross’s post illustrates so many aspects of how empowered, engaged, activated patients view their...
View Article“The perfect thing a doctor can tell a patient with chronic illness”--Ileana...
That’s the title of a new post on the Mighty blog written by Catherine Richardson, a 23-year-old chronic illness patient from Vancouver, Canada, who also blogs at findingmymiracle.com. It’s about...
View Article“Inside Medicine at Weill Cornell: Meeting in the Middle”--Ileana Balcu
Weill Cornell produced a series of mini-documentary style videos showcasing mentoring at their institution. This final video specifically focuses on how patients mentor their students....
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